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Caregiving Resources |
Our Background
A Public Health Strategy For Dementia
In 2018, the U.S. Congress passed the BOLD Infrastructure for Alzheimer’s Act, providing the blueprint for the first national strategy to address dementia in the U.S. The activities outlined in BOLD aim to create a cohesive national public health infrastructure for dementia, aligned with the Healthy Brain Initiative’s State and Local Road Map for Public Health, 2023-2027 and the Road Map for Indian Country.
Established by the BOLD legislation, the Public Health Center of Excellence on Dementia Caregiving (PHCOE-DC) works to elevate the work of family dementia caregivers, and collaborates with the members of the HBI Collaborative to build the capacity of public health departments to support family caregivers of people with dementia nationwide.
CLICK HERE for more information and other resources.
CLICK HERE for toolkits
The Dementia Action Collaborative (DAC) recently updated the Washington State Plan to Address Alzheimer’s Disease and Other Dementias. This plan offers goals, strategies, and recommendations as a blueprint for action for the next five years. The DAC is a group of public and private partners committed to preparing Washington state for the growth of the population living with dementia.
CLICK HERE for Dementia Resource Page links
Websites
A program of the National Hospice and Palliative Care Organization Understanding and discussing topics like advance directives, palliative care, caregiving and hospice care may feel overwhelming on top of dealing with a serious or life-limiting illness. Our guides and resources are here to help you through the journey you are on and to aid you in understanding the choices you have. Also available in Spanish. Caregiving and other resources for end of life by Barbara Karnes https://bkbooks.com/
Powerful Tools for Caregivers Programs https://www.powerfultoolsforcaregivers.org/
National Institute on Aging - Source for caregiving information articles including tips for Caregivers Understanding Wandering Risks With Older Adults ---
For many of us, staying at home as we age, also known as aging in place, is ideal. In fact, a recent survey shows 90% of adults [1] 50 and over say they want to age in place. [2] But home safety is critical, and for older adults with cognitive decline, wandering is a safety concern you should consider. https://www.ncoa.org/adviser/medical-alert-systems/dementia-wandering/ https://www.nia.nih.gov/health/alzheimers-caregiving Caring for a Person with Alzheimer's Disease: caring-for-a-Person-with-alzheimers-disease.pdf (nih.gov)
A Spirituality of Caregiving: The Henri Nouwen Spirituality Series Biblical Support for Process Caregiving, Stephen Ministries, 1990 Caring for the Caregiver - A Guide for Congregational Support of Family Caregivers, Lutheran Deaconess Association, 1303 La Porte Ave, Valparaiso, Indiana, 46383, (extensive Bibliography with Resource Lists, 4 sessions, surveys included) Courage for Caregivers: Sustenance for the Journey in Company with Henri J. M. Nouwen God Knows Caregiving Can Pull You Apart: 12 Ways to Keep it All Togetherby Gretchen Thompson Hugs for Caregivers, by Pauline J. Sheehan. Questions listed for group discussion included. Hope for Caregivers: A 42-Day Devotional in Company with Henri J. M. Nouwen Our Greatest Gift: A Meditation on Dying and Caring Take Back Your Life: A Caregiver's Guide to Finding Freedom in the Midst of Overwhelm The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease and Other Dementias (A Johns Hopkins Press Health Book)The Dementia Caregiver's Survival Guide: An 11-Step Plan to Understand the Disease and How To Cope with Financial Challenges, Patient Aggression, and Depression Without Guilt, Overwhelm, or Burnout You Need Care Too: Self Care for the Professional Caregiver by Barbara Karnes, RN |
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